Maybe the Vitamin D3 supplement I am taking along with the cocoa is what triggered my healing process. I asked about possible drug problem but it was not investigated. The whole process of recovery took about two years, but I was mostly better after around 14 months. I too had this tingling and burning sensations and they completely went away and never came back. Some people describe the damage as being "floxed." Fluoroquinolone antibiotics such. . I am not able to walk again. If you have lots of symptoms, they can stem from dysfunction in a system in teh body. Im trying to eliminate this entity from the inside out. Did anyone on this forum take cipro levaquin or avelox around the time their neuropathy began. This drug should be taken off of the market. After I had taken the antibiotic and realized I had a reaction, I started implementing strategies to deal with it right away. Dr. Ghalili has performed countless hours of research into Cipro and Levaquin toxicity, studying how they affect your body and determining why they cause toxicity. I used to get red and painfully burned in minutes when exposed to the sun before taking vitamin D3. Thank you so much. And its like Im not even sad about it, Im just numb to pretty much everything. Every day I am being able to exercise and walk a bit longer. There is one thing I forgot to mention that might be relevant. Most of my nutrition seems to be coming from the supplements and my morning protein drink lately but at least thats something. No appetite but I am eating nutritiously. I luckily stopped taking it after 5 doses, I started taking calcium because calcium blocks the absorption of Cipro, I took a multivitamin, D3, liquid magnesium, potassium and lots of water Im starting to feel better I think. Its also causing depression too. I have a great relationship with him and hes always seemed so open about all kinds of strange types of things. On August 3 2020 I was prescribed a 10 day course of Levaquin 750 mg. For a UTI. I figured antibiotics were essentially the same and took 500 mg twice a day as prescribed. One this resolves, they all go away. I've been on CR for 18 years to slow aging, I became vegetarian in 2007, and then changed to a vegan diet in 2012. Many times its not just the Cipro that causes poisoning, its other medications combined with Cipro that allow the damage to ensue. You cannot simply rely on supplements to heal. Ive always been a really healthy and strong person I always think that Id never be one of the unlucky ones. I am not scared of supplements but what has saved me so far is to listen carefully my body. amzn_assoc_design = "enhanced_links"; Click here for instructions on how to enable JavaScript in your browser. I recommend researching info and dosages. Especially since I reacted on first dose, stopped it, pain still present which is why I was referred to an ENT. Week four I realized I was wrong about that. Many patients who come to Dr. Ghalili and were previously diagnosed with fibromyalgia and chronic fatigue syndrome have underlying cellular damage caused by Cipro and Levaquin toxicity. If youre like me and my experience, youve either see information on the internet or met with Drs who totally dismiss these issues as outliers for elderly people, or youve convinced yourself that your life is finished and death is the only thing left to look forward to. Loss of hearing. Sorry that you feel that way I do understand how severe some people are affected by these antibiotics and I would never recommend them to anyone. Prior to this I had no problems with digestion whatsoever in my life at anytime. So there is hope, but you gotta try to keep calm, do what you can to support your body and mind in healing, and let time go by until your body repairs. Its something that I had prior to Cipro probably from playing in bands. This restored my blood pressure to normal level WITHOUT any additional prescription drugs for blood pressure control. So, what's the big deal? I just took Cirpo last week, and now Im going crazy with all the symptoms. Thank you for sharing, I took a Cipro and flagyl in February 14th. God bless you. I also empathize and understand your suffering you had at a such an early age. Am happy God has brought me to read how I will take care of my health from this point after reading your article, much appreactive as doctors wouldnt have been able to see me through this one. Rats that are administered magnesium and vitamin E is able to diminish the damage from Cipro [5]. I am not scared about them, but that type of pain to me is useless and unnecessary. A person acutely affected by Levaquin generously shared that tip in her blog. My sister with a history of taking our mother to doctors not familiar with her medical history, took her there. Youtube, Dr. Howard Liberwitz and Dr. Shallenberger. The best for me so far has been the Magnesium Citrate and the absolute best is Magnesium Chloride but in its topic form. He wants to share that information with his colleagues in Brazil to see if there is something that can be done and for them to be more aware of the damage that these drugs may cause to some people. amzn_assoc_placement = "adunit"; What it doesn't tell you is that the drug is actually capable of unleashing an entire syndrome of systemic toxicity upon the patient which is often referred to by victims as "floxing" or being "floxed." Others refer to the condition as "fluoroquinolone . So blogs like this are a lifesaver! But I reckon there are probably many people out there who get side effects weeks later and never connect it with taking the quinolone antibiotic. I also suffer from extreme anxiety, depersonalization, nightmares, and now nerve pain in my toes, as well as weakness in my legsthings I never had before taking cipro. Pain, burning, tingling, numbness, weakness. Regarding the magnesium, I have tried more types. Magnesium is extremely important as magnesium is chelated out of your cells leading to muscle weakness and tightness. Cipro was designed as a powerful, last drug of choice, antibiotic to be used in extreme bacterial infections that did not respond to prior treatment; it has become a first choice antibiotic for many, many physicians and dentists, despite its' Black Box Warning status. The True Story of Cipro. Sorry to hear about your experience I still wonder why us though, why did it affect us so badly whereas many people dont seem to have issues. The link is the following: https://floxiehope.com/peggys-story-cipro-poisoning-and-recovery/. This is the scariest thing Ive ever taken, with no help to be given by healthcare because guess what?? I cant comprehend why doctors still prescribing this poison. My Achilles tendon and shoulder ached. But now Im like okay, I get it I mean Im not at a point where I want to kill myself, but this stuff has my head so twisted where it has me feeling like Id be okay with not being alive anymore. Ill continue the supplementation to enhance my own bodys ability to heal itself. A higher incidence of ruptures or tears in the aorta has also been found with . Thanks. Im about 10 months into symptoms from Ciprowhich has mainly affected the ligaments surrounding my knees but also my elbow tendons to a lesser extent and at times my ankle tendons. I had to press him to do something for the pain and inflammation so he prescribed a steroid. The recovering from this will never happen. I learned it needs to be taken with black pepper capsules and flaxseed oil (or other oil). Antioxidants like lycopene, astaxanthene and tendon supportive drugs like collagen supplements. A full mitochondrial regeneration program is one way to minimize the long-term effects of Cipro by using detox mechanisms with mitochondrial rebuilding. My current diet has plenty of calcium in green leaves as spinach and nuts that I prepare in smoothies. And yes, its sad that I didnt do my own homework. Do you feel your chest is tight or you cant get enough air? The acute Plantar Fasciitis in both feet is also gone. It is no coincidence that chronic fatigue syndrome and fibromyalgia is diagnosed in a 5:1 ratio of women compared to men. Depression . Phone (General Inquiries): (855) 437-7836, Urinary tract infections including cystitis in women. Its not a very good feeling. However, I took 4 Azithromycin pills to knock out a sinus/ear infection. Based on the research I did at the time, I concluded that adding bromelain would be a good idea because of its powerful anti-inflammatory effects. , Congratulations on your recovery! My ears felt full and were ringing. Thats the kind of time frame Id expect. 0.5 mg every 8 hrs and 1 mg before bed. Anthocyanins have many health-promoting effects which can aid in recovery. Same as you and many other people affected by this type of antibiotics describe. I really do hope your method works, it has to. I instantly got pretty much all the side effects, unfortunately memory and confusion were 2 of them and didnt realize what was happening until 13 pills into it. Thanks. The good news is that I felt even healthier later, a few years after Cipro, than I did before. Contact your doctor immediately and notify them of your side effects, additionally ask them if the Cipro is actually necessary based on a culture and sensitivity. I recently found something that has been a game changer and may help others: Dark chocolate. Currently suffering gastro issues, tendonitis or tendonopothy.. freaked out. And Im drinking a TON of filtered water with trace minerals added back in and totally never pee? I feel I am living now more in the present and being grateful of the things I have and not the ones I lost. The most efficient method is to use a silicon muffin pan to make 12 doses. Its just the way the body deals with damage, trying to repair and then ultimately killing the cell to regenerate new. Bromelain is found mainly in pineapples. I have been reading more your blog and the post you wrote back in 2008 about the side effects you had with Cipro. Days later I was told to try it again that perhaps the symptoms increased due to water in the ear. It took over a year or so before I could say that I was sleeping well again but sometimes certain things would easily trigger insomnia (things that would not do so in the past.) Im already taking magnesium, B12, B2, a MVT which includes D3/K2, Omega 3 as well as GI Revive. In animal studies, it does make then more susceptible to side effects. Why you should learn about the dangers of Cipro? I started taking Cipro 500mg 2x. This book is extremely important and is not meant to give a treatment plan for fluoroquinolone toxicity, it is clearly meant to point out the damage of the drugs such as cipro and levaquin and to bring awareness and promote change in how these drugs are prescribed. To maintain strength and heal wounds, soft tissues produce collagen, a rope-like protein that provides strength and flexibility in tissues like ligaments and tendons and muscles. Is Lydia and I was on this for 7 day taking 2 pills a day and my wrist have been hurting, I was just thinking okay it must be arthritis, but after reading this maybe it isnt. In powder form, it can be used in teas and in food. I admire your proactive approach and determination. I have done lots of training, particularly running, and kung fu in that time. The first step is to understand why you were floxed in the first place by placing the pieces to the puzzle. We are definitely like minded regarding health challenges. It took a good 45 min until I felt better. I only took 1A /1T a day, 24 hours apart. So, what's the big deal? Thanks for giving us some hope. Its INSANE that neither the doc or pharmacist warned me or gave me anything to read up on about the risks. Yogi Sleep teas with ingredients such as Valerian root and chamomile were helpful. Studies have found that omega 3 prevents nerve damage and speeds up nerve regeneration [8]. This cyclic effect is not unique to quinolone-recovery but also happens with many other conditions. Really anything to help. Im taking magnesium and I think Im gonna start drinking tamarind paste today. Dr advised first dose evening of the 3rd and next dose in the morning. I am so glad you were able to recover 100% and feel even better now. https://youtu.be/ZE9vllbn9Rc, Heres his YouTube channel: https://www.youtube.com/channel/UCnadtVqAT6z20QdoXW-xLjw. An orthoped specialist in effects of drugs confirmed the side effects were caused by cipro. Ive been taking nascent iodine, among many other supplements including Cali tea by Sunrider (natural, decaffeinated green tea with many other herbal additives that detoxify the body Sunrider makes top-end products by a gent names Dr. Chen that I encourage your readers to check out). You cant even imagine how much you have helped me in my recovery from the poisoning with Levoflaxin. Since March 2021 Ive lived with neuropathy, (no pain), just numbness, and off-balance. One more thing that I noticed and helped me. Ive read hundreds of stories and spoken to many people back on the old Yahoo Group as well as forums that used to exist (they seem to be down now.) Being able to cry helps a lot, and if you can do it with a friend helps even more. Ginger helps to alleviate symptoms of nausea and also dry mouth. It makes a big difference! The journey to recovery doesnt have to be something you go through alone though. 'I Seriously Thought I Was Going To Die in the First Year' This process can take months though. There is no miracle cure, youre right. The once healthy man he met at his office a few weeks ago was now disabled. I had had Cipro on two previous occasions for the same . Studies indicate that quinolone-induced toxic effects could be prevented by magnesium supplementation. These drugs are tremendously important drugs for certain people, like with renal transplants or renal disease, where they need an antibiotic . There are many different phytonutrients that can have protective effects by increasing cell protection mechanisms, up-regulating DNA repair, reducing pro-inflammatory cytokines and immune system dysfunction, and protect against oxidative stress and cell death. I wrote him an email telling him exactly what happened and asked him questions about why he prescribed me a such a potentially dangerous drug for a mild condition. I couldnt stop my tears when I told him my experience. After adding cold water to each cup and stirring in the powder I put the tray in the oven at a low temperature for 15 minutes to dissolve it. Since mitochondria are found in every cell, where theyre responsible for producing energy, its easy to see how mitochondrial damage by ciprofloxacin toxicity would lead to fatigue. I now sleep perfectly well and have no trouble falling asleep or staying asleep (two issues I had after cipro). . Without the information shared online by people like you Id probably still be on a wheelchair and thinking that my life was over. Now all of a sudden the man thinks I nuts. The herbal remedy contains 45 gm DE passiflora incarnata, 42 gm DE ziziphus suan zao, 33gm DE humulus lup in capsules, between meals , 2 caps 3 times per day. I reported this to Novartis and they had no suggestions for how to reduce pain. Take a mix of tocopherols and tocotrienols, as these act as powerful antioxidants and aid in recovery. I forgive him and I no longer resent him anymore. Your blog post and information about supplements are fantastic. Im not sure if you are familiar with it. I never saw a neurologist because I knew what happened. WIth each cycle the symptoms were a little less intense. L-Lysine. Generally we are told to avoid fluoride at all costs. Hi Lou, my husband is suffering from Cipro poisoning and is having really bad anxiety, panic, agitation and very tense muscles including issues with swallowing at night and tremors too. It must be above 90% of cocoa. Regarding your comments on magnesium, yes it is so important and even the late Dr Jay Cohen, who wrote a book on these toxic drugs theorized that damage might be lessened by actually taking magnesium 4 hours apart from the fluoroquinolone. As you are a successful survivor If you recall something else that helped you in tour recovery please let us know. Also, many people who have a reaction from Cipro report sensitivities from foods and have a more limited diet. It takes approximately 70% of your mitochondria to be damaged in order for you to feel the symptoms. But if I listen to it, its there. Oh! I dont know if you experienced similar ups, downs and setbacks. If youve had a severe reaction after taking an antibiotic called Cipro, it can be a scary time if youve read some of the horror storieson the internet. The doctor told me it was a great medication I took his word for it. This is to be expected I had things coming and going for months and they would generally cycle. Its like a storm that you just have to ride out while suporting your body Be easy on yourself though and dont get frustrated with setbacks. Hi Chuck. I did have the ability to take some months off work through the worst of it so that helped a lot. Ive also taken D mannose in the past (a long time ago) with success in treating a simple E coli bladder infection. It seems I have lost some weight but so far am not underweight. I used baking soda to withdrawal off of acid reducers (research how the body starts making more acid cells whole taking these meds). I also had very little energy level as well. You may have already tried D mannose, but just in case you havent, its a good preventative and can treat uncomplicated UTIs quite well. While many people were afraid to supplement and be proactive due to being worried about side effects or a flare-up of symptoms, I was absolutely 100% determined to recover. I am mentioning the Vitamin D3 factor as today I found an article of somebody that heal the tendons pain and overcome this illness with Calcium, Magnesium and Vitamin D3 supplements. Within 3 days of taking the meds, I lost the ability to walk unassisted, I lost 40 pounds in 2 months, my body burned all over, my vision was . Back on the same protocol now with severe tendinitis in both achiles. Ill try to reach out to people whove been affected and ask what supplements theyve found helpful. All this symptoms and more will last until you punch out. I think my own case was probably made worse by being low in magnesium (maybe) since I had issues with it before. I am supplementing with NAC and now will add bromalin based on learning that helps as well. amzn_assoc_linkid = "b6205bacb1820c8198dafc01f019962e"; Anyone who reads myblog now will know that I switched to a vegan diet in 2012, but at the time of taking ciprofloxacin, I was a vegetarian. I could not sleep for more than 30 minutes at a time and nothing worked. But I took another 4 drops in my right ear and biggest mistake, immediate intense pain, burning inflamation and throbbing in jaw and throat, stabbing pain in the jaw/ear, hard to swallow. Now, my life has turned. And thats exactly what I did. Eventually, I was able to build myself back up again so that I could do just as much as before and not have to worry about getting injured. A full mitochondrial regeneration program is one way to minimize the long-term effects of Cipro by using detox mechanisms with mitochondrial rebuilding. Hi its been almost three days after taking Cipro hcl 500 mg tab for one week as I took 1 tablet 2 times daily. 4. No dairy, gluten sugars. They tested for MS, Lyme, epstein-barr, gullian barre, kidneys, liver function, blood count levels, they checked for different viruses and bacteriaes, i mean they literally searched for everything The only thing they could come up with was I small discrepancy in the white matter in my brain likely caused from a concussion I received a few weeks early. Or collagen peptides? Hey Thank you for your suggestions. I could not sleep in bed because the pain intensified when lying down. You need to try to do this otherwise you can develop something called learned insomnia where you associate bedtime with not sleeping. Ive always had issues with being more susceptible to magnesium deficiency and thats why I have to always supplement it despite getting over the recommended daily allowance from my diet. It doesnt make me a better person or teach me anything. Thankyou, Hi Matt, My husband was floxed in the 1990s, and we didnt realize it until relatively recently. Will this last my shole life? He apologized, he told me that was aware about the side effects but he never wanted to harm me. Adults500 to 750 milligrams (mg) 2 times a day, taken every 12 hours for 14 days. I started taking collogen in the form of gelatin powder from fish , initially 2 tablespoons per day for a month and then 1 tablespoon a day. Im suffering neuropathy in my hands and feet and ridget muscles in calves and some pain, headaches, anxiety, insomnia. Afterwards put the tray in the refrigerator and everyday pop out one gelatine plug to add to a hot liquid or oatmeal. I had 6 MRIs, a spinal tap, and was tested for EVERY disease known to man. There are reports though that recoveries do happen, at least in the studies on PubMed, within weeks to months. Im terrified with it only being three weeks its going to get worse before it gets better. The first thing after stopping the antibiotic is to avoid steroids like prednisone, NSAIDs like Ibuprofen, and antidepressants like Celexa or Prozac as these will all heighten toxicity symptoms. In June 2016, I entered the ER for food poisoning and the treating physician decided to prescribed 500mg of Cipro and 500mg of Flagyl. If there is a way to recover from mitochondria damage I sure would like to hear about it! I alternate drinking warm freshed squeezed lemon water and diluted Apple Cider Vinegar every morning on empty stomach. I havent been able to find this supplement for years (I think its been discontinued) but it was formulated well. I far from recovered but Im no longer bed ridden, I am about 70% recovered. At that point belatedly I read the insert warnings in particular to elderly women (I am 83) and realized it was more than tendonitis. As my day went along and after reading the side effects of this drug I was in shock knowing that I started to develop such side effects although am praying that the sides effects will just go away. A biofeedback test showed damage to my aorta and arteries around my brain, and thats when I realized it was the cipro, since now the fda has warned against aortic aneurysms. It's an antibiotic, right? Its also caused really bad anxiety and manic feelings and some pretty worrisome depression. I m taking, magnesium taurine, b conplex nac, vit c, calcium d glucarate, fish oil, cbd oil, pro biotics. But I have mentioned here some of the main things. But I suppose I should look into sooner than later. I was floxed a week ago today. Bromelain has been studied a lot for its ability to enhance soft tissue healing, but it also has numerous other benefits such as improving sinusitis symptoms, treating diarrhea, speeding up recovery from surgery, blocking pro-inflammatory cytokines which cause tissue destruction, and can improve cardiovascular health. Thanks so much for your article. Ill update you on how the Ozone IV Therapy goes after a few sessions. He is taking some of the same supplements that you are recommending, and we will add more of those supplement that you like for working on repairing Cipro induced damage to tendons, muscles, nerves, and even his heart. Any Recommendations What to do Next ????? I have a long list of things that Im taking. Everything. The cocoa has something that at least in my body is able to neutralize the oxidative stress cause by the Levaquin. When I was affected, I had a lot of symptoms but thankfully most of them disappeared within the first 12 months and then they were completely gone by two years. I am using a low dose of a benzodiazepine called Clonazepam. During the day I play with kids, and at night when I put them to bed I come out side and smoke cigarettes and listen to music and talk to my friends online now for the last month I silently watch them play and at night I silently smoke , no music, no friends, just stare at the ground this is probably the most social interaction Ive had in the last four weeks. Since I started to eat dark chocolate I am slowly feeling much more relaxed and last night I was able to sleep 8 hrs with just 0.5 mg which is very low dose. And while you wait for your body to heal itself, treatment is fairly intuitive: stop use of the fluoroquinolone and have your doctor switch you to another antibiotic; rest your tendons; use anti-inflammatory drugs for pain (being careful not to exceed daily limits); elevate your leg (if the pain is in your Achilles' tendon); and ice the affected His strategies for stopping anxiety and panic attacks were extremely helpful for me and they worked. I have thrown on a few others here and there, including Shalijit. Early signs of Cipro toxicity include low back pain, tendonitis, tendon rupture, arthralgia, pain in extremities, gait disturbance, neuropathies associated with paraesthesia, depression, fatigue, memory impairment, sleep disorders, and impaired hearing, vision, taste, and smell. As an Amazon Associate I earn from qualifying purchases. BUT the problem being when I was younger I was an IV drug user, I literally do not have a single vein, like when I had my son two years ago they couldnt find a vein with the ultra sound machine even for the IV so to even get an IV for the contrast for an MRI that I dont even need (or to have blood tests done) I would have to get a picc line which wouldnt be very much fun. Im going to my doctor today to see what he can do about the rash and thrush and anything else and already made my list to get all the supplements you recommended. Your email address will not be published. Thanks to the devils pill that a doctor prescribed named Cipro. Thank you for any more tips you might have. Cipro is also prescribed in a 5:1 ratio of women compared to men. Check out my article here about how supplementing zinc and magnesium can improve sleep in humans, as well as my article on tips to deal with insomnia. It was comforting to effectively read from you that its a three steps forward, two steps back recovery process. And, oh the mental side effects were right out of a Stephen King novel. But I did recover, and its now been 13 years and I dont experience any of those side effects and I havent for a very long time. She was diagnosed with a UTI at the hospital but she went in for something completely different. Its you will to fight for your recovery what I admire the most and I share with you. Magnesium, which I take in a combo with zinc and calcium. I also took l-theanine, and magnesium. The headaches started slowly above the left brow on and off, but the last 5 months became chronic. If I find something else that might help, I will let you know. Flagging Anxiety & Panic | Dr. Harry Barry | Talks at Google Before I read this I was certain I would end up in a wheel chair or taking my own life. Hope you are well. In this paper, it is shown in humans that a combination of green tea, astragalus, goji berry extracts, L. fermentum, ellagic acid, beta 1,3 glucan, and vitamin D3 can increase the number of circulating stem cells. amzn_assoc_ad_type = "smart"; Be careful about what meds you take in the future as some can make it worse, I personally dont believe that the side effects are as rare as they make out to be either. And after each cycle of my symptoms reappearing (insomnia, nerve pain, tendon pain, etc) I would get much closer to fully recovering. Another fluoroquinolone -levofloxacin - has been linked to 80,000 . Reports stated the effects of the Azit, stayed in your system at least 15 days after the last dose. I would look up my symptoms and follow up researching what supps would help each symptom. CIPRO Toxicity. Day Just 6 days ago for a drug resistant UTI, Id already been on 3 other antibiotics and it wouldnt go away, so by the time the emergency room doctor gave it to me I didnt hesitate! I too have taken all the supplements you suggest and still do. I wish you well and a very fast recovery from Cipro! I personally was devastated by Ciprohead to toe damage, including torn meniscus in both knees; visual problems; pericardial effusion; peripheral neuropathy; and lots more. At first, I was much more prone to injuries of the ligaments, tendons, and muscles like many of us were after these antibiotics but that went away also as I trained my body to become stronger. After reading the side effects, I called my GI offi e who ordered it for an ecoli intestinal infection and I was told to stop it. Suspect Vocal Cord Dysfunction!). Only to slip back into eating things I hadnt. Bought it straight from an Urgent Care for 15 bucks and it came in a generic white bottle titled Ciprofloxacin. This study investigated whether ciprofloxacin and moxifloxacin cause oxidative stress and mitochondrial damage in cultured normal human Achilles' tendon cells and whether an antioxidant targeted to mitochondria (MitoQ) would protect against such damage better than a non-mitochondria targeted antioxidant. Avoid exercise and use of the affected area, and immediately ask your doctor to switch to a non-fluoroquinolone drug. The muscle surrounding the left side of the head above the brow is what cramps into pain. I spoke to people who got affected after taking quinolones for many years, and unfortunately many of them never fully recovered. Thanks for your article. I was already healthy prior to Cipro, but I was even healthier and stronger AFTER I recoverd. amzn_assoc_ad_type = "smart"; Anyway, I hope Ill be able to share my full recovery story someday soon. Im so sorry you or anyone has had to go thru this nightmare. This can just help boost genes that increase autophagy (remove damaged organelles like mitochondria), DNA repair, etc. I too healed from serious illness, and your article brings to mind a saying my mother had, when there is a will, there is a way!.

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